Here is the family at the Red Sox game this weekend!
So, I tried to post a new blog Saturday morning @ 4am before we left for Toronto, but I ran out of time and didn't want to miss the bus ride there, so you all had a weekend free of the Ramsgard news. Lucky you, cause it wasn't great news.
On Friday, I had my first appointment with the Radiation Oncologist, Dr. Bogart, one of Syracuse's best according to the CNY magazine this month. I happen to pick him becaue he was one of my first new friends when I moved to Syracuse all those years ago. The meeting was good and he explained all there is to know about radiation as it relates to me, Andy was there taking it all in as well. He also happened to have the pathology results I was still waiting to hear about from the Surgeon, so he shared those with me. It apprears when they took the breast "lump" and that extra 1 cm around it in surgery last week, that the 1 cm around it still has DCIS cells in it, in 3 different locations, which means they didn't get it all as they had hoped. Not great news, but still needed further info. from the surgeon as he was the one in there and could interpret what these results met to me.
So, we went to Shell & Marc's for dinner and continued to await the call from the surgeon. Let me tell you, if you awaiting what you know is already bad news, good friends, homemade chips & salsa, and a few mojitos help alot! The call came @ 6:32pm. The surgeon said he had already spoke with Dr. Bogart and asked if I had more questions. So the answer to my questions were:
1. yes, it is true, they did not get it all and there was involvement in 3 areas which isn't great, but it is still treatable.
2. He said he alrady took quite a bit of the breast tissue and as such, doing another lumpectomy would leave deformity and still require radiation & hormones.
3. He recommends a left breast mastectomy & reconstruction with hormone treatment following. no radiation needed as they are taking the boob and there is no lymph node involvement, that was still clear!
4. He also said some people also opt for the bilateral mastectomy, what I now call the "Christina Applegate" if they feel they will worry about reoccurance too much in the other breast or have a strong family history/test positive for the gene thing. He said research does
not indicate a direct correlation of DCIS occuring in the other breast just because it occurs in one. Also, with doing a bilateral I will forego the radiation and possibly the hormones (I have a call into my oncologist to find out the answer to this as the surgeon didn't know for sure)
5. He recommends talking to the Plastic Surgeon now to see what he thinks about one versus two as far as comsmetic outcome. I have a call into him now and lets face it people, at this point, the cancer is going one way or the other and what is really important after all this is a nice set of boobs!
So, I have been doing lots of research on this all and reading about what other people choose to do and why and trying to figure out what will be right for me and Andy. I also have names from several of you and friends of yours that I can talk to who have been through this and I plan on talking with them too. I obviously also need to talk with the Oncologist and Plastic Surgeon and I am optimistic that will happen today.
I meet back with the Surgeon tomorrow for follow up from the surgery and to discuss what I want to do. I have a scheduled mtg. with the Oncologist on Wed. and I still planning on going to that and seeing if he can shed any more light on all this. So that's all for me right now, let's move on to happy stuff...
Rex had a great 10th birthday in Toronto watching 2 Blue Jay/Red Sox games back to back Sat./Sun. they lost the first one, but won on his birthday with Dice K pitching. (It was our first time seeing him pitch and it was awesome. Rex also got the treat of having his name on the scoreboard in the fifth inning. It was a quick trip up and back, but very memorable & a nice distraction. We also got Rex a signed Jacoby Ellsbury rookie card, which made him pretty darn happy! Andy, on the other hand, not so happy as he had no recliner to sleep in and sleeping in the hotel room chair just wasn't the same. Poor thing, he was happy to be home and weathered the pain of the bus ride well. He'd do anything to make sure Rex had a great time!
Andy is off to an appointment today. He is having another chest xray and meeting with his surgeon for follow up on the lungs and ribs. There are still occassions I will look over and see he is still pretty uncomfortable, but he keeps it pretty well hidden most of the time.
Thanks to all for all the incoming cards/flowers/snacks/meals/gifts. It warms our hearts to know we have such giving and loving friends.
Sherie